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RE: Our daughter and the struggles around food - Finally making progress!
hi there @thisismylife I just wanted to drop a short note to say that I do feel your pain. My youngest is 9 years old and has been diagnosed with autism, ADHD, Demand avoidance, and Sensory Processing Disorder. We live in the UK. We found that the support was so much easier to come by within school once we had an official diagnosis and that it in fact helps to clarify a child's needs for the school and directs the funding to support the child in the best way possible. Whilst they remain undiagnosed, the school's hands are often tied as regards funding and the amount of supportive action that they can therefore take. It sounds as though your child may be on the spectrum with autism and sensory processing issues, although I am just a parent who has seen and been through a lot, not a qualified practitioner 😉🙄😏 Honestly, from a personal perspective, it isn't a label in so much as it is a key to unlock support. I would encourage you to seek out an assessment from an Occupational Therapist as regards sensory processing struggles that she appears to be having with her eating habits and go from there. My son is generally pretty good with his eating habits (His sensory issues are evident in different ways - primarily clothing textures, personal space, loud noises etc) but my niece who is autistic too... really struggles with food textures, flavours and colours, so I have an inkling of your struggles. Feel free to DM me in discord if you would like or simply reply here if you would like to chat further about personal experiences. !LUV
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Hi @samsmith1971 thanks for taking the time to leave such a helpful comment! I appreciate it a lot. You may be right about the school being able to help better, the thing is school is totally new to her in general, as well as a new language so everything is a bit loaded currently and I was thinking to take it step by step. We considered trying to let her do the last year of kindergarten an extra year (first year in Spain that would be after moving countries) but as far as I've read until now, Spain is not that keen on doing these things and usually just sees how it goes and take it from there. I will propose it when I finally speak to someone about the school issue, but in this case probably the same thing will be the bottle neck: no diagnosis. Our health insurance is just live since a few weeks but we probably need the public insurance for that which is not live yet (due to a missing document number which may take more weeks from now) so you can probably already see this will never be set into motion before school starts.
My plan is to let her start, observe how things go, meanwhile explore to see what could be done and then probably end up with a process that's been put on hold as the winter arrives and things close down/waiting lists grow etc.
This is also one of the reasons that after the MRI at the time, I never went into further hospital visits with her, the process in Hungary was VERY frustrating and slow and language was a big issue. I always knew that this would be less stressful here. If I sit it out a little longer, I can probably even use the private health insurance for this process, meaning I don't have to deal with public health issues (waiting lists and traveling to these places) because I can then say that school has noticed some things. Which is not that weird that they haven't noticed things yet until now because it was kindergarten and I noticed that there were quite a few kids there that were "different".
Meanwhile, trying to cope with this the best way possible, I think it will be great if I can chat a bit about it in Discord though, so if you give me your handle I can send you a DM. I appreciate it! I will leave mine here too, but often it doesn't work well the other way around (no clue why)
HelloSunshine [ThisIsMyLife]#1947
Thanks for your support <3
!CTP
Absolutely no worries at all... happy to share. I have dropped into your discord, so you have a contact for me now :-) !LUV
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