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RE: Endometriosis Awareness: Painful Periods Are Abnormal

I really would like doctors to also LISTEN TO THEIR PATIENTS and DON'T THINK THEY KNOW BETTER about what is best for them.
I was diagnosed with endometriosis, and it runs in my family. My mom and all her sisters have had hysterectomies for various reproductive issues. I asked about having one. I have never wanted kids, and I'm queer to boot, so it's not like it's ever going to happen on accident.
The doctor wouldn't even discuss it. Her only offer of help was birth control pills, and that was it. End of discussion. Because "you're too young to know" if I wanted kids or not (I was 29 at the time and had been suffering since I was 16).
Well here I am at 43, still don't want kids, still queer, still with a functioning reproductive system.

I have also have had doctors flat out say "what about your husband" (don't have one) "well what if you get one" (I'm queer) and frankly, even if I was straight and cis and married, IT'S MY FRIKKIN' BODY, NOT THE IMAGINARY HUSBAND'S.

Just 100% over how reproductive health is treated in our society.

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I wish they would listen, to some extent you understand your body better and why are they worried about what your "Imaginary Husband" wants. As you said, even if you were straight, it's your BODY and the Husband is not the one suffering fgs.

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Yep. There is still a lot of old school sexism when it comes to reproductive health here. And both of these instances where I got these comments from doctors were from women doctors!! It's just like, embedded in the culture.

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I really would like doctors to also LISTEN TO THEIR PATIENTS and DON'T THINK THEY KNOW BETTER about what is best for them.

It's unfortunate that many doctors act like you can't have an opinion about your condition. I have experienced this with several doctors.

The doctor wouldn't even discuss it. Her only offer of help was birth control pills, and that was it. End of discussion. Because "you're too young to know" if I wanted kids or not (I was 29 at the time and had been suffering since I was 16).

No counselling, nothing 🙁 You had to do your own research I guess.

IT'S MY FRIKKIN' BODY, NOT THE IMAGINARY HUSBAND'S.

You didn't come to the world with one, why do you need 'permission' for your own body. This is just sick. I'm sorry you have to go through this. Isn't there any way around it currently?

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At this point the pain levels have ratcheted way down from where they were and it's tolerable now. It timed with me starting to eat my allergy diet (I have a ton of allergies that I didn't know about for most of my life, and when I finally got diagnosed I stopped eating those foods and a lot of health problems that I would have never thought were allergies went away), so my guess is that it was the soy in my diet. I was a vegan or a lacto-ovo vegetarian for over a decade before I switched to the allergy diet, so I ate a fair amount of soy, not because I ate tons of fake meat really but because it was my milk substitute and egg substitute and things like that. Soy has phytoestrogens, so my guess is that it was messing with my hormones. My thyroid levels became normal too when they were always right on the border of hypothyroidism before.
I'm also hopeful that since I'm in my 40s now, menstruation time will end soon. :)

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